Research Programs
access to outdoor recreation
Members of the SANTESIH reception team participating in the program:
- Eric Perera, carrier (MCU University of Montpellier)
- Nathalie Le Roux (MCU University of Montpellier)
- Sylvain Ferez (MCU HDR University of Montpellier)
- Rémi Richard (MCU University of Montpellier)
- André Galy (PAST University of Montpellier)
- Olivier Obin (PAST University of Montpellier)
- Thomas Riffaud (Assistant Professor, University of Montpellier)
- Geoffrey Lassalle (research associate, University of Montpellier)
- Gaël Villoing (MCU University of the Antilles and Guyana)
Background and rationale:
Adventures in the great outdoors, which once seemed unthinkable for people with disabilities, are now becoming a reality and adding a new dimension to disabled sports in France. Here, we focus on the pioneers who worked to make the most extreme natural locations accessible, the means they deployed (innovation, networking, etc.) to create the conditions for the institutionalization of certain outdoor activities, such as handiski or FTT (all-terrain wheelchairs), which we will examine. We therefore wish to understand the history of the actors, often people with disabilities who took matters into their own hands, but also the participation of current social movements that contribute to developments and involve human assistance and/or guides/volunteers.
Publications:
- Perera E., Thaler R., and Galy A. (2021) "The eco-responsible values of off-road wheelchair expeditions: a way to reinforce the portrayal of disability as an asset," Revue STAPS, pp. 27-38.
- Perera E., Villoing G., and Galy A. (2020), "The inventiveness of all-terrain wheelchair mountaineers: the use of technology to promote independence and highlight the differences of people with disabilities," Nature & Recreation magazine, pp. 41-51.
- Perera E., Villoing G., and Ruffie S. (2019), "Becoming a handiski pilot: valuing slowness to ensure a safe experience for disabled skiers in ski resorts," Nature & Recreation magazine, pp. 21-32.
- Perera E. & Villoing G. (2019), "Adjusting deficiency to nature tourism: the case of a contemporary experience of expeditions using all-terrain wheelchairs (ATW)" Journal of Sport and Social Science.
- Le Roux N., Galy A., and Perera E. (2018), The emergence of the All-Terrain Wheelchair in France between DIY and innovation: the role of the pioneers of the activity, Les carnets du Labex ITEM, Innovation et territoire de montagne.https://labexitem.hypotheses.org/680
- Perera E., Villoing G., Ruffié S., & Gosset S. (2017). The All-Terrain Wheelchair, a "pair of mountain shoes": bodily experiences and identity reconfigurations.Science & Motricité.https://doi.org/10.1051/sm/2017013
- Villoing, G., Perera, E., & Le Roux, N. (2017), The institutionalization of off-road wheelchair riding in France (1990-2015): ‘truly a sport of sharing and diversity’. Sport in society, ‘Be disabled, becoming champion’, 1-14.http://www.tandfonline.com/doi/full/10.1080/17430437.2016.1273617
- Perera, E., Villong G. (2016), Pioneers of the all-terrain wheelchair: "Experiencing the mountains, but differently" in France from 1980 to the present day, L’INqualifiable, Issue Zero, 39-43.http://fr.calameo.com/read/004732913c41fdc091983
AutiSport: Identifying social barriers and enablers to sports participation for people with autism spectrum disorder during the transition to adulthood.
overcome obesity
Overcoming obesity through surgery? Longitudinal translational study of postoperative outcomes in patients
Members of the SANTESIH reception team participating in the program:
- Sylvain Ferez, project leader (MCU HDR University of Montpellier)
- Eric Perera (MCU University of Montpellier)
- Anne Marcellini (Professor, University of Lausanne)
- Geneviève Le-Bihan (PAST University of Montpellier)
- Yann Beldame (Postdoctoral Fellow, University of Montpellier)
- Maguelone Rouvarel (PhD student, University of Montpellier)
Background and rationale:
While bariatric surgery is effective for severe obesity, weight loss always seems insufficient and weight regain occurs over time. In addition to the threat to the ideal figure that has been achieved, there is the fear of losing the new social relationships established as a result of sudden weight loss—particularly in the context of romantic relationships. Social pressure becomes overwhelming, with the fear of regaining a "fat" body evoking the stigma associated with weakness and lack of self-control.
Primary and secondary objectives:
The originality of this work lies in its multidisciplinary approach to the experience and management of bodily transformations in obese individuals who have undergone bariatric surgery. The longitudinal study aims more specifically to understand changes in eating habits and physical activity during the 12 months following surgery, highlighting the interactions between biological, sensory, and social changes. In this context, the study will examine not only the effects of sudden physical changes, but also how individuals manage the upheaval in their "relationship with meaning" caused by the disruption of a transformed body, and the accompanying reconfiguration of lifestyles and bodily practices (care, hygiene, leisure activities).
Publications:
- Marcellini, A., Perera, E., Rodhain, A., Ferez, S. (2016), "Body image and engagement in physical activities among people affected by obesity," Public Health, 28/1.
- Fortier V., Marcellini A. (eds.) (2014), Obesity in Question: A Transdisciplinary Analysis of an Epidemic Bordeaux: Les Études hospitalières, Collection "À la croisée des regards."
Becoming an adult with a developmental disorder: obstacles and facilitators (Devadulte-AD)
Members of the SANTESIH reception team participating in the program:
- Anne Marcellini (Professor, Faculty of Social and Political Sciences, University of Lausanne and Santésih, University of Montpellier)
- Sylvain Férez, Nathalie Le Roux, Rémi Richard (Lecturers, Santésih, University of Montpellier)
- Laura Silvestri and Yann Beldame (PhDs in anthropology, postdoctoral researchers, Santésih, University of Montpellier)
Research program:
This research program, which began in November 2015 and will end in October 2017, is funded by the Rare Diseases Foundation through the third call for projects "SHS & rare diseases" and by the University of Montpellier. It is the result of the coordination of three structures bringing together diverse but perfectly articulated skills, levels of inquiry, and objectives:
- The Reference Center for Rare Diseases and Developmental Disorders at the Arnaud de Villeneuve University Hospital in Montpellier, headed by Pierre Sarda until June 2016 and then by David Geneviève.
- The regional health network "Living with a Developmental Anomaly in Languedoc Roussillon," coordinated by Florence Margaill, who works closely with the Reference Center.
- The social sciences research laboratory specializing in the sociological approach to health and disability issues, host team No. 4614 "Health, Education, and Disability" at the University of Montpellier, led by Sylvain Ferez.
The term "developmental disorders" covers a wide variety of "rare diseases" that can lead to intellectual developmental delays, which may or may not be associated with behavioral disorders. In our society, these two types of difficulties are the ones that cause the most serious disabilities for those affected. The aim of this research is to understand how people affected by these developmental anomalies can achieve a satisfying adult life. The goal is to identify the recurring obstacles and facilitators they encounter depending on the environments in which they have had or will have the opportunity to live (family, educational, professional, etc.). The study will focus on a population of adolescents and young adults (aged 16-25) affected by three rare chromosomal abnormalities: trisomy 21, 22q11 deletion, and Williams-Beuren syndrome. The survey will be conducted using questionnaires, life story interviews, and focus groups. The expected results will shed light on the practices and questions of professionals in the field and families concerning the educational and professional orientation of these young people, their support in social and emotional life, the management of information concerning medical labeling, and the analysis of its emotional, identity, family, and social consequences. The aim is therefore to improve the quality of support provided to these individuals as they transition to independent adult life.
build the prison
Building the prison
For a study of "spatialities" within five Belgian and French prisons
Edited by:
- Laurent Solini (SANTESIH EA 4614, University of Montpellier)
- Jennifer Yeghicheyan (LERSEM-CERCE EA 4584-E1, University of Montpellier)
- Sylvain Ferez (SANTESIH EA 4614, University of Montpellier)
Research team:
- Jean-Charles Basson (Lecturer, PRISSMH-SOI EA 4561, University of Toulouse 3)
- Elsa Besson (PhD student, History and Art Criticism EA 1279, University of Rennes 2)
- Alice Jaspart (FNRS Research Fellow, ULB067 Criminology Research Center, Free University of Brussels)
- Sylvain Ferez (SANTESIH EA 4614, University of Montpellier)
- Paul Landauer (Assistant Professor, AUSser-OCS UMR 3329, School of Architecture, City and Territory of Marne-la-Vallée)
- Gérard Neyrand (Professor, PRISSMH-SOI EA 4561, University of Toulouse 3)
- David Scheer (FNRS Research Fellow, ULB067 Criminology Research Center, Free University of Brussels)
- Laurent Solini (SANTESIH EA 4614, University of Montpellier)
- Jennifer Yeghicheyan (Postdoctoral researcher, SANTESIH EA 4614, University of Montpellier)
Research summary:
Punishment, control, discipline, deterrence, deprivation, reform, education, therapy, rehabilitation, and, more recently, the integration of certain urban principles: the functions associated with incarceration continue to multiply, even to the point of contradicting one another. The prison system, from construction programs to initial designs and daily renovations, is riddled with inconsistencies that can be revealed through careful observation of "spatialities." A long-term ethnographic study, conducted in five Belgian and French prisons and combined with archival research, provides an understanding of the various ways in which spaces of confinement are appropriated. During the design phase, when spaces are still only conceptual, and during the operation of the facility, once the spaces are inhabited, furnished, or even redesigned, it is necessary to examine the relationship between desired or tangible atmospheres and anticipated or existing uses. The functions, meanings, and even identities attributed to spaces are primarily the result of positioning, orientation, the use of natural light, the use of certain materials or colors, the presence of decorative elements, as well as the uses to which they are likely to be put. Ultimately, it is prison spaces that best reveal the contradictions underlying the construction of a "mosaic prison" with multiple missions and definitions, considered, to say the least, as the unsurpassed translation of punishment.
Funding:
Research Mission Law and Justice
Related publications:
- Solini L., Yeghicheyan J., Ferez S., 2019, Prisons. Uses and Appropriations of Prison Spaces, Editions de la Sorbonne, "Locus Solus," [http://www.editions-sorbonne.fr/fr/livre/?GCOI=28405100042770]
- Jaspart A., Solini L., 2016, "Promenade." From the study of a minor neighborhood through its courtyard, Champ Pénal/Penal field, Vol. XIII, [http://champpenal.revues.org/9431]
- Solini L., Scheer D., Yeghicheyan J., 2016, "A window open to the outside world"? Ecologies of two prison spaces, Sociology, 7, 3, 225-242, [https://sociologie.revues.org/2851]
Related study days:
- October 5, 2016 – "Building the prison"
- September 17 and 18, 2015 – "Prison architecture, prospects"
- June 26, 2014 – "Thinking about prison architecture"
- December 5, 2014 – "Comparing prison architectures"
paraperf
Edited by:
Rémi Richard
Research team:
Santesih Laboratory:
Rémi Richard
Yann Beldame
Sylvain Ferez
Eric Perera
MS Laboratory, INSEP:
Helen Joncheray
Valentine Duquesne
French Federation for Adapted Sports:
Elodie Couderc
Anne Marcellini
French Federation Sesame Autism:
Christine Meignien
Funding:
IRESP, CNSA
Research summary:
The AutiSport project aims to analyze the reasons why adolescents and young adults aged 16 to 25 with ASD do or do not engage in physical activity, but also to understand why some of them stop practicing sports when they reach adulthood. To do this, we want to reconstruct the different types of sporting trajectories of these young people aged 16 to 25 by placing them in the broader context of their educational and professional paths within or outside medical and social institutions. More specifically, we want to observe the impact that changes in their institutional and social trajectories—which occur as they transition into adulthood—may have on their participation in sports. Does the transition to the "ordinary" professional world or to a so-called protected institution, where young people aged 16 to 25 with ASD have new socializing experiences, encourage them to continue their sporting activities, readjust and/or transform them, or even gradually or abruptly stop them?
overcome obesity
Overcoming obesity through surgery? Longitudinal translational study of postoperative outcomes in patients
Members of the SANTESIH reception team participating in the program:
- Sylvain Ferez, project leader (MCU HDR University of Montpellier)
- Eric Perera (MCU University of Montpellier)
- Anne Marcellini (Professor, University of Lausanne)
- Geneviève Le-Bihan (PAST University of Montpellier)
- Yann Beldame (Postdoctoral Fellow, University of Montpellier)
- Maguelone Rouvarel (PhD student, University of Montpellier)
Background and rationale:
While bariatric surgery is effective for severe obesity, weight loss always seems insufficient and weight regain occurs over time. In addition to the threat to the ideal figure that has been achieved, there is the fear of losing the new social relationships established as a result of sudden weight loss—particularly in the context of romantic relationships. Social pressure becomes overwhelming, with the fear of regaining a "fat" body evoking the stigma associated with weakness and lack of self-control.
Primary and secondary objectives:
The originality of this work lies in its multidisciplinary approach to the experience and management of bodily transformations in obese individuals who have undergone bariatric surgery. The longitudinal study aims more specifically to understand changes in eating habits and physical activity during the 12 months following surgery, highlighting the interactions between biological, sensory, and social changes. In this context, the study will examine not only the effects of sudden physical changes, but also how individuals manage the upheaval in their "relationship with meaning" caused by the disruption of a transformed body, and the accompanying reconfiguration of lifestyles and bodily practices (care, hygiene, leisure activities).
Publications:
- Marcellini, A., Perera, E., Rodhain, A., Ferez, S. (2016), "Body image and engagement in physical activities among people affected by obesity," Public Health, 28/1.
- Fortier V., Marcellini A. (eds.) (2014), Obesity in Question: A Transdisciplinary Analysis of an Epidemic Bordeaux: Les Études hospitalières, Collection "À la croisée des regards."
Becoming an adult with a developmental disorder: obstacles and facilitators (Devadulte-AD)
Members of the SANTESIH reception team participating in the program:
- Anne Marcellini (Professor, Faculty of Social and Political Sciences, University of Lausanne and Santésih, University of Montpellier)
- Sylvain Férez, Nathalie Le Roux, Rémi Richard (Lecturers, Santésih, University of Montpellier)
- Laura Silvestri and Yann Beldame (PhDs in anthropology, postdoctoral researchers, Santésih, University of Montpellier)
Research program:
This research program, which began in November 2015 and will end in October 2017, is funded by the Rare Diseases Foundation through the third call for projects "SHS & rare diseases" and by the University of Montpellier. It is the result of the coordination of three structures bringing together diverse but perfectly articulated skills, levels of inquiry, and objectives:
- The Reference Center for Rare Diseases and Developmental Disorders at the Arnaud de Villeneuve University Hospital in Montpellier, headed by Pierre Sarda until June 2016 and then by David Geneviève.
- The regional health network "Living with a Developmental Anomaly in Languedoc Roussillon," coordinated by Florence Margaill, who works closely with the Reference Center.
- The social sciences research laboratory specializing in the sociological approach to health and disability issues, host team No. 4614 "Health, Education, and Disability" at the University of Montpellier, led by Sylvain Ferez.
The term "developmental disorders" covers a wide variety of "rare diseases" that can lead to intellectual developmental delays, which may or may not be associated with behavioral disorders. In our society, these two types of difficulties are the ones that cause the most serious disabilities for those affected. The aim of this research is to understand how people affected by these developmental anomalies can achieve a satisfying adult life. The goal is to identify the recurring obstacles and facilitators they encounter depending on the environments in which they have had or will have the opportunity to live (family, educational, professional, etc.). The study will focus on a population of adolescents and young adults (aged 16-25) affected by three rare chromosomal abnormalities: trisomy 21, 22q11 deletion, and Williams-Beuren syndrome. The survey will be conducted using questionnaires, life story interviews, and focus groups. The expected results will shed light on the practices and questions of professionals in the field and families concerning the educational and professional orientation of these young people, their support in social and emotional life, the management of information concerning medical labeling, and the analysis of its emotional, identity, family, and social consequences. The aim is therefore to improve the quality of support provided to these individuals as they transition to independent adult life.
Past Projects
MQESP-Muco
Measuring the Quality of School and Professional Environments for Adolescents and Young Adults with Cystic Fibrosis (MQESP-Muco)
Members:
- Sylvain Ferez, Rémi Richard, Éric Perera (Lecturers, SANTESIH EA 4614, University of Montpellier)
- Pauline Lewis (student, University of Montpellier)
- Damien Issanchou (Postdoctoral researcher, SANTESIH EA 4614, University of Montpellier).
- Laura Silvestri (Postdoctoral researcher, SANTESIH EA 4614, University of Montpellier).
Research program:
Medical advances in recent years have significantly transformed the life expectancy of people with cystic fibrosis. Young people affected by this disease can now attend school almost normally, pursue higher education, etc. Nevertheless, for these adolescents and young adults who want to be "like everyone else," daily life is marked by doubt and anxiety, particularly the fear of not being able to hide their illness. Faced with these difficulties, one of the preferred strategies is often to disengage from social activities and reduce compliance with treatment, sometimes to the point of abandoning care altogether. Drawing on the theoretical field of the "social model of disability" (Fougeyrollas), the main objective of this study is to identify the major obstacles and facilitators to social participation encountered in two specific environments that patients now have the opportunity to frequent: school and the world of work.
The expected results focus on identifying the effects (positive and/or negative) of environmental variables (related to the characteristics of the environments frequented) and interactional variables (related to the multiplicity and quality of the interactions experienced) on the social participation of patients. In view of these variables, the hypothesis that the immersion of these young people in environments that have not developed the capacity to recognize their specific difficulties will aggravate their disorders and impairments is to be tested here. The added value of the project is to shed light on the reasons (which are not solely medical) for the social, academic, professional, and even health-related disengagement (neglect of care) of adolescents and young adults with cystic fibrosis.
Funding:
Gregory Lemarchal Association
Members:
- Nathalie Le Roux, Michael Segon, Anne Marcellini, Marie-Christine Michel-Courrouy (SANTESIH, EA 4614, UM1).
- Montserrat LLINARES (DISQUAVI, Blanquerna University, Barcelona)
- Maks BANENS (Max Weber Center, UMR 5283, CNRS)
- Stéphane CHAMPELY (CRIS, EA 647, University of Lyon 1)
- Bruno GENDRON (Orléans Economics Laboratory, UMR 7322, TOTEM team, University of Orléans)
Research program:
This research aims to understand the professional world in relation to disability, focusing in particular on the influence of qualification levels and types of disability on access to employment. It is part of the policies promoting access to higher education for young people and the professional integration of "disabled workers," reinforced by the French law of 2005 and the entire European legislative framework. There is strong social demand for accurate data on the effectiveness of the compensation systems offered and on equal opportunities in access to employment for people with disabilities. This project is part of this dynamic. It should be noted that the only national survey available dates back to 1999 (Palauqui, Lebas, 1999).
Over this period, three research projects were funded (IRESP, 2008; MIRE-DRESS 2010-2012; AGEFIPH 2012-2014, currently underway). During these projects, we reviewed the available knowledge and proposed areas of focus (Le Roux, Marcellini, 2011), conducted a secondary analysis of the GENERATION 2004 survey (Céreq, 2008), and developed a questionnaire and survey protocol that was tested with AEHs at Montpellier 1 University and improved through a wave of in-depth interviews (n=25). This enabled recommendations to be made to decision-makers regarding the inclusion of this population in future general population surveys.
A national survey of students who have benefited from accommodations due to a disability or health issue is currently being funded by AGEFIPH. Thanks to multiple partnerships with university support services for students with disabilities, the aim is to collect detailed information on multiple aspects of individual trajectories (disabilities and their evolution; use of support measures during studies, job search, and employment; participation in associations and social life; daily life and time constraints).
More informationhere.
Productions:
LE ROUX N., MARCELLINI A. (2011). The professional integration of students with disabilities in France. Review of issues and areas of research, ALTER, Vol. 5, No. 4, 281-296.
LE ROUX N., SEGON M. (2011). From studies to employment: what paths are available to students with disabilities? University Disability Symposium, Montpellier, November 19, 2011.
SEGON M., BANENS M., CHAMPELY S., LE ROUX N. (2012). The integration pathways of former students with disabilities: statistical overview and research perspectives, Work, Employment and Public Policy Conference, June 14-15, 2012, University of Caen.
SEGON M., LE ROUX N., (2012). Study of the future of former students with disabilities: a secondary analysis of Génération 2004 (Céreq) and analysis of integration narratives, DRESS/MIRE research contract report.
LE ROUX N. (2012), Associative culture, family, and disability: the case of students with disabilities, 7th SIICLHA, December 6-8, 2012, University of Rouen.
SEGON M., LE ROUX N., (2013). Training and employment pathways for former students with disabilities: forms of recourse to support mechanisms and identity dynamics, Agora Debates/Youth, No. 65.
LE ROUX N., SEGON M., (2013). The trajectories of former students with disabilities: statistical analysis and individual experiences, International symposium "Disability between individual trajectories and institutional logic: employment, work, social policies," April 11-12, 2013, University of Lille 3.
SEGON, M., LE ROUX, N., BANENS, M., CHAMPELY, S. (2014). What statistical data can be used to measure the transition to working life for young students with disabilities?Revue Française des Affaires Sociales, No. 1-2, 2014.
disabled sports organization
Members:
- Anne Marcellini, Sylvain Ferez, Nathalie Le Roux, Eric Perera, Julie Thomas, Damien Issanchou, Elise Lantz, Yann Beldame, Estelle Duval, and Marie-Christine Courrouy-Michel (SANTESIH, EA 4614, UM1).
- Nicolas Bancel, Julie Cornaton, and Stanislas Frenkiel (Institute of Sports Science, University of Lausanne)
- Sébastien Ruffié and Gaël Villoing (ACTES, University of the Antilles-Guyana)
Research program:
The program aimed to analyze, from a socio-historical perspective, the sports offerings specifically targeted at people with disabilities. It focused in particular on understanding the conditions under which these offerings emerged and developed. Conducted in collaboration with the ACTES team at the University of the Antilles-Guyana (S. Ruffié, MCU), it received support from the Research Mission (MiRe) of the Directorate for Research, Studies, Evaluation, and Statistics (DREES) between 2009 and 2011. In addition to a section focusing on the structuring of a specific circus program, thanks to the PhD work PhD Lantz, it focused on studying the institutionalization of the disabled sports movement (1954-2008) in France, in connection with the international structuring of the Paralympic movement (based in particular on the PhD work PhD Gaël Villoing and Damien Issanchou). To this end, it benefited from a close partnership with the French Disabled Sports Federation (FFH). With its help, two study days were organized in October 2011.
The results focus primarily on: 1) the evolution of organizational structures (particularly various federal structures) based on secondary sources, but also original primary sources (bulletins from various federations, administrative archives, and personal archives) that had not been previously exploited; 2) on methods of mobilization and leadership careers, traced through interviews with several generations of leaders, focusing on their life stories and practices; 3) on detailed knowledge of certain key associations or clubs (through the production of monographs). These results provide perspective on the history of the disabled sports movement, comparing it both to that of collective mobilization in the field of disability (Paterson et al., 2000) and to that of collective mobilization through sport (linked to demands for the integration of women or the fight against homophobic discrimination by LGBT movements).
Since 2013, the program has benefited from a new collaboration with Professor Nicolas Bancel (Institute of Sports Science, University of Lausanne), who has obtained funding from the Swiss National Science Foundation for a PhD conducted by Julie Cornaton, co-supervised by Sylvain Ferez) and a post-doctorate (conducted by Stanislas Frenkiel) for a project entitled: "A social history of the Swiss and French Paralympic movements and their elites (1960-2010)". In addition to this initial comparative study between France and Switzerland, the program is now moving towards a comparative study with the history of the Adapted Sports Federation (FFSA), examining the specific barriers to access to high-level sport for people with intellectual disabilities.
Productions:
Since 2010, nine scientific articles, eleven book chapters, one research report, and three edited volumes have been produced on this program, in addition to 24 papers presented at conferences or symposiums (including 13 invited lectures). Three articles have been submitted to journals in the field of sports history: The International Journal of the History of Sport, Stadion, and European Studies in Sports History. Members of the program have also been asked to coordinate an issue (related to their work) of the journal Corps (scheduled for publication in 2015).

The integration of athletes with intellectual disabilities into the Paralympic movement. Analysis of the sporting, institutional, social, and identity implications.
Members:
- Anne Marcellini, Yann Beldame, Elise Lantz (SANTESIH, EA 4614, UM1)
Research program:
This project aims to assess the impact of the reintegration of athletes with intellectual disabilities into the Paralympic movement in 2009. Two points seem essential to bear in mind in this reflection:
– On the one hand, a study closely linked to the sporting field, focusing on the repercussions of Paralympic integration on athletes, the groups that support them in their sporting lives, and their usual social environments (families, professional spaces, possibly medical-social establishments in which they live, etc.). In this first area of work, we will use a biographical approach based on the concepts of careers, trajectories, and bifurcation. The aim will be to understand how athletes with intellectual disabilities enter high-level and Paralympic sports careers and what the socializing effects of such integration are. We will examine the conditions for athletic performance for these athletes, knowing that most of them are required to balance their professional or educational activities with the demands of high-level sport (daily and intensive training). We also wish to measure the potential effects of destigmatization and emancipation linked to the implementation of such a performance production system for athletes whose specific characteristic is intellectual disability.
– On the other hand, we want to focus our research as closely as possible on decision-makers and federal officials from the FFSA (French Federation of Adapted Sports), and officials from other sports bodies involved in integrating the FFSA into the Paralympic movement. Here, we will study the federal organization and its institutional dynamics. This second reading will focus on the transformations of organizations and institutions. To this end, we will analyze the careers, practices, and discourses of FFSA decision-makers and federal officials (at the international, national, regional, and departmental levels), as well as officials from other sports bodies involved in the FFSA's changing situation, in order to understand the regulatory and organizational transformations.
Funding:
This research is being conducted in collaboration with the French Federation for Adapted Sports and with its financial support.
sport and HIV
Members:
- Anne Marcellini, Sylvain Ferez, Nathalie Le Roux, Eric Perera, Estelle Duval, and Mélanie Perez (SANTESIH, EA 4614, UM1).
- Julie Thomas (Max Weber Center)
- Barbara Triandoum (University of the Antilles-Guyana)
- Patrick Fougeyrollas (Laval University, Quebec City)
- Isabelle Wallach (University of Quebec in Montreal).
Research program:
The program focused on the physical and sporting experiences of people living with HIV (PLHIV), and how these experiences are shaped, starting from diagnosis, in interaction with the discourse and measures proposed by community associations and organizations in the health and medico-social sectors. The program received funding from several research projects carried out in collaboration with colleagues from several universities.
The first area of research concerns the experience of HIV and social participation. Between 2009 and 2012, a national survey using questionnaires (n=619) and interviews (n=50) on "Access to physical activities for people living with HIV" was conducted in partnership with A. Lomo Myazhiom (University of Strasbourg, MCU), S. Ruffié (University of Antilles-Guyane, MCU), P. Liotard (University of Lyon 1, MCU), Stéphane Champely (University of Lyon 1, MCU), and S. Héas (University of Rennes 2, MCU), with support from Sidaction and the Ile-de-France Region. At the same time, between 2011 and 2013, a survey based on interviews (n=22) and participant observation of community organizations (n=4) was conducted on the social participation of PLHIV in leisure activities in the Montpellier region, thanks to the support of the Research Mission (MiRe) of the Directorate for Research, Studies, Evaluation, and Statistics (DREES) of the Ministry of Social Affairs and Health. It is within the framework of this second project, led in collaboration with Professor Patrick Fougeyrollas (Laval University, Quebec), that Estelle Duval is pursuing her PhD.
A second area of research focuses more specifically on the history and functioning of associations fighting HIV in Guadeloupe. This is the subject of a partnership with two teams from the University of the Antilles-Guyana: ACTES (EA 3596), through S. Ruffié, and CRPLC (UMR-CNRS 8053), through its director Justin Daniel, who is co-supervising Barbara PhD with Sylvain Ferez. Between 2009 and 2012, the work was carried out thanks to funding from the research project "Associative environment for HIV/AIDS care in Guadeloupe: the role of people living with HIV and the role of women" by the Fondation de France and the National Agency for Research on AIDS and Hepatitis (ANRS). Since 2013 (and until 2015), they have been able to rely on financial support from the Fondation de France for the research project "Social gender relations, contexts of vulnerability, situations of violence: a comparative study of the biographical trajectories of women users, volunteers, and employees in associations fighting HIV/AIDS in Saint Martin and Guadeloupe."
The CIFRE (ANRT) grant obtained in 2013 for Mélanie PhD , in collaboration with the Sida Info Service association, is now opening up a new avenue of reflection on the issue of the experience of the contaminating body and its management in people with "chronic infectious diseases." Two responses to calls for proposals have recently been submitted to the ANRS and the Gilead Sciences Endowment Fund with a view to comparing the experiences of PLHIV with those of people mono-infected with HBV, HCV, or co-infected (HIV-HBV, HIV-HCV, or HIV-HBV-HCV). A project for a "research initiation contract" has also been submitted to the ANRS to develop a study on "HIV, body image, and social participation: A comparative study of four regions in Europe (Languedoc-Roussillon), North America (Quebec and Montreal), and the Caribbean (Guadeloupe)" in collaboration with Patrick Fougeyrollas (Laval University, Quebec) and Isabelle Wallach (University of Quebec in Montreal).
Productions:
Since 2010, six scientific articles, eight book chapters, three research reports, and one edited volume have been produced on this program, in addition to 29 papers presented at conferences or symposiums (including five invited lectures). One article is currently being reviewed (accepted with modifications) by the journal Loisir et Société; two are about to be submitted to the journals ALTER and Sex Roles. Given the significant resources available to this program, a great deal of data remains to be exploited.
